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When co-founder Nasha Fitter’s youngest daughter was diagnosed with the rare disease FOXG1 syndrome, Nasha quickly learned that access to rich clinical information was the biggest gap in advancing research for a cure.

In 2017, Farid co-founded a company, Ciitizen, where the goal was to build a platform that allowed cancer patients seamless access to their data. When Nasha joined the company in 2018 and helped evolve its focus into rare disease, it became clear that this unique approach could unlock key clinical data and build a patient community that could fundamentally shift care for patients with rare diseases while accelerating cures.

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Courageous Parents Network is a non-profit organization that orients and empowers parents and others caring for children with serious medical conditions, by providing resources and tools that reflect the experience and perspective of other families and clinicians. Here—in videos, podcasts, printable guides, Guided Pathways, and blog—you will find wisdom from families and pediatric clinicians to help you feel you are doing the very best you can for your child and family.